Our agency, Lux Research has a new treatment for Celiac Disease. The success in treating Celiac disease has lead us to treat other gluten related diseases such as Hidradenitis suppurativa, gluten allergy and gluten intolerance ailments. This treatment works because it lowers Gluten Antibodies - Immunoglobin M, Immunoglobin G and Immunoglobin E ( the last one causes allergy). Since Gluten ataxia is due to gluten antibodies then this treatment should be effective for this disease too. We use the discoveries, knowledge and advances collected from several Modern Medical Researches.

But our biggest problem is not that it works. Because the Modern Medicine and their research has been unsuccessful, they have made the Claim that there is no cure for Celiac disease and all other gluten related diseases. But that is not true. Their failure is actually because they have shown exactly the way to solve the problem but they have not tried ALL the options available to really fix the problem because of a technicality. The claim that there is no cure has banned us from many forums and the result is there are not many subjects for our trials. We need a good number of cured cases to really prove to the world and the Medical community that there really is a cure for Gluten ataxia and gluten diseases. The treatment is free. This is a win-win situation.

The full explanation & info can be viewed at: http://forums.delphiforums.com/celiacHealing/messages/?msg=1.1 If the above url does not work, highlight and paste it in a new window.

Lux Research is a division of Lux Health Resources.

Our agency, Lux Research has a new treatment for Celiac Disease. The success in treating Celiac disease has lead us to treat other gluten related diseases such as Hidradenitis suppurativa, gluten allergy and gluten intolerance ailments. This treatment works because it lowers Gluten Antibodies - Immunoglobin M, Immunoglobin G and Immunoglobin E ( the last one causes allergy). Since Gluten ataxia is due to gluten antibodies then this treatment should be effective for this disease too. We use the discoveries, knowledge and advances collected from several Modern Medical Researches.

But our biggest problem is not that it works. Because the Modern Medicine and their research has been unsuccessful, they have made the Claim that there is no cure for Celiac disease and all other gluten related diseases. But that is not true.Their failure is actually because they have shown exactly the way to solve the problem but they have not tried ALL the options available to really fix the problem because of a technicality.

The claim that there is no cure has banned us from many forums and the result is there are not many subjects for our trials. We need a good number of cured cases to really prove to the world and the Medical community that there really is a cure for Gluten ataxia and gluten diseases. The treatment is free. This is a win-win situation.

The full explanation & info can be viewed at: http://forums.delphiforums.com/celiacHealing/messages/?msg=1.1

If the above url does not work, highlight and paste it in a new window. Lux Research is a division of Lux Health Resources.

This is really interesting, I didn't find out that I had this disorder until tonight............I just thought acting drunk, twitching, not hardly being able to walk, being cloudy headed, acting as if I had ADD, was just part of the whole gluten intolerance thing. I better really start being super careful what I consume, not like I'm not already but I really better watch it now after reading this, cause especially here lately my symptoms have gotten much worse when I consume gluten.

In my last post, my point (first paragraph) is the irony - we can prove gluten-sensitive enteropathy for the brain but NOT for the intestines. This significance is lost on the public. There is no animal model for celiac disease that presents all features of the disorder; namely, the intestinal ones.

In most of their studies, both Lindfors et al and Hadjivassiliou et al acknowledge that, unfortunately, neither passive transfer of IgG-class gliadin antibodies nor adenovirus vector-mediated expression of celiac disease-derived TG2-specific autoantibodies in mice have resulted in any kind of intestinal pathology resembling that seen in human celiac disease. Similarly, experiments to immunize mice with the celiac disease autoantigen TG2 have thus far failed to induce any morpological changes in the small bowel.

But, and I emphasize: On the other hand, both Lindfors et al and Hadjivassiliou et al also acknowledge that the intraventricular injection of both the anti-TG2 or the anti-TG2/3/6 crossreactive autoantibodies provoke transient, but equally intensive, ataxia in mice.

In summary, gluten ataxia exists. But we don't have a non-evasive (and simple) means of diagnosis yet. Both Lindfors et al and Hadjivassiliou et al are researching the same problem (to determine a means of diagnosis and the related technology) in their studies. I think this subtlety is unfortunately lost on those outside of the scientific community. What these teams are doing is complicated and doesn't "translates" well to the public.

I have suffered with gluten ataxia for roughly two years. My balance issues typically go away after a couple weeks after I accidentally eat gluten. But my memory and dementia-like symptoms would linger, and avoiding gluten did not seem to help.

It wasn't until I switched to a lower carb paleo diet that I started to feel a million times better. My memory is still a little foggy, but I am hopeful it will continue to get better, especially if I keep eating superfoods for the brain like salmon and blueberries.

There is a website @ www.glutenataxia.com with a forum where a few of us discuss what seems to work for us. Please come check it out if you would like more info.

There is also a great blog by a psychiatrist that discusses the research that has been done on low carb / gluten free / paleo eating and its psychological effects @ http://evolutionarypsychiatry.blogspot.com/

Hey BODYBUILDER - don't freak out. You are not alone. Google the words "bodybuilder celiac" and be amazed! Good luck!

i never had any problems with gluten up until the summer before i became a senior in high school

i was about 200 pounds at 5 foot 8 inches and it was mainly muscle because i really wanted to become a bodybuilder and i was training hard and felt great

then all of a sudden my joints started aching like crazy and i was feeling so fatigued that i decided to take some time off from working out, but it didn't help

nothing became better, everything only got worse, my stomach was aching constantly now, i was staying home from school almost every week with flu like symptoms (and i ONLY ate toast on those days, probably the worst thing i could have eaten)

Until finally in my law enforcement class we ran a mile and a half, and i could only do two laps and at that i felt like i was going to die or something right there, so i got home feeling really bad,

but luckily my aunt had similar symptoms when she was younger, and she thought that i might have a problem with gluten, so i went to the doctor, and got a blood test for celiac disease and tested positive

now im 50 pounds lighter :( and i still but i still have balance problems, do you think it could be caused by casein from milk products?

im just kind of freaked out now that i will have permanent neurological problems when my dream was to become a bodybuilder

Hi to those who have added comments. Im Carolyn, one of the people in the article. It has been good to see that we are not alone and others are living with the same symptoms. Titrant asks about the ketogenic diet. I know Sarah has cut out sugar for reasons of doing a anti-candida diet. Maybe it is the low carb aspect of that which helps? Before I had my worst symptoms start, I was on a low carb diet to lose weight for my wedding. I had never felt so good. I guess because without knowing it I had cut down on gluten. After the wedding I went back to a normal diet. My doctor wonders if this was a neurological insult that triggered everything going more rapidly. (the physical symptoms started 6 months after the wedding) So maybe I need to go back to that...

I could not believe it when I read this article---this has described my journey - detail for detail. In the early 1980's I was falling apart- tested for MS, other neurological testing, even told to get my head examined. Anti gliadins did show up, but no one even seemed to know what that was. After bouts in a wheel chair, using a cane and unbelievable weakness and inabliltiy to digest anything...by the grace of God I found out about the Gerson Clinic and spent two weeks there in 1991. Being a organic vegetarian diet with emphasis on detoxification, I did begin to improve.

I still remained with severe allergies and lung difficulites which I am still treating. As I began to reintroduce things to my diet, I knew it was more than just wheat even rice was a problem- I have been on the Specific Carbohydrate Diet and have been doing pretty well. My energy needs to be carefully guarded - but as many of you know - boy do we feel it if we inadvertantly get some wheat.

I am so grateful to have seen this article...to see it more or less defined really helps. I am sure this must be a very unusual reaction, but it has been a great encouragement for me to read it. It has been a LONG haul - I am thankful to have better direction as I move forward!

I know most of these symptoms. It was high time when I come to know the problem with gluten and gave it up. It is horrific though how many times I ingested gluten based only on being too trusting too people, to whom I should rather have given a lie direct instead of believing them.

Btw. do any of the quoted authorities recommend the old good ketogenic diet to their patients to check out if they improve further? I am on such a diet and it introduced much improvement into my functionality.

I'm am SO happy to see this article in this magazine. I've been diagnosis with Gluten Ataxia and Gluten Encephalitis. I never had gut symptoms. I now receive Social Security Disability because the neuro-phyic evals (brain function testing) showed clearly my real brain issues. I can look normal to people, but trust me, my brain is a mess. If I inadvertently eat gluten, I need my cane or a wheelchair to get around. It looked like I probably had multiple sclerosis before I got the diagnosis. I have all of the same symptoms listed in this article. Thank you for finally doing this article. Sarah Bosse is my hero for sharing her story. My doctor has talked to Dr Hadjivassiliou regarding my case. It's not good news. I'm grateful for a diagnosis and am very strict on the GF diet, but may never regain all of my brain function.

I don't remember not having these symptoms. I didn't start walking until 2 years of age, I had a bloated belly, I never had very good hand eye coordination, I don't balance well, I have evidence of bad bruises and scrapes on my legs from trying to learn how to ride a two wheeled bicycle. I was said to have Secondary Carnatine Deficiency Muscular Dystrophy due to my chronic fatigue and those symptoms I have mentioned. But I didn't get worse so I didn't have MD at all. Last summer I got another muscle biopsy and was said to not have MD at all. But I did have something different with me but it wasn't defined.

It wasn't until my symptoms of Rosacea and my ongoing diareah that I connected them both that I might have some kind of digestive issue. So I stopped gluten on my own and mentioned it with my doctor who said that it was "too expensive" to be tested due to my insurance being under disability didn't cover those kind of tests.

I will be looking forward to having answers, I feel that my fatigue has been taken away after almost a year of a gluten free diet. I still have balance issues as I fall up stairs once in a while and my hands tremor still. And its still ridiculously hard to use four wheeled roller skates but i still try. But its nice after all these years to be possibly one step closer to having an answer to all my questions. I may never be normal but I got the answers I've always wanted to know when I was told I had MD at age 12. Thanks for this article and publishing this online.

I have been doubting my gluten sensitivity for years because of the lack of gastrointestinal symptoms. I do get the brain fog, slow memory, and lately dizziness and clumsiness, speaking and writing changes... I had read that some people are affected by gluten in this way. I have a strong family history of early Alzheimer's and find it interesting how many of these symptoms resemble my father's and relatives' progressive diseases. Maybe it was gluten ataxia after all. Thank you for sharing this article. I will never eat gluten again.

At least six years ago I began to have brain blips, balance and walking problems and ended up seeing a neurologist and going through a physical therapy program to learn how to walk again. Everyone blamed my diabetes, although I knew that wasn't right. Brain fog and other problems overcame me 20 minutes after my meals, and I knew the problems were food related. It took me three years of research before I learned about from the British Journal of Medicine about gluten ataxia. I went for ELISA testing, gave up gluten and am much improved. I might not regain all the brain power I once had, but I think I'm holding my own -- walking, driving (limited), etc. I occasionally have speech problems, and sometime I mix up words. By the way, even though I went through a lot of neurological testing, my neurologist didn't have a clue. So be sure to take this article with you to any and all of your doctors.

This article has been very informatve, I have been having some of these symptoms. I will take a copy of the article to my neurologist. Thanks

This is all sounding like what I have been experiencing... WOW... I have been wondering why I have been having these "Nerological" symptoms.......

That is really interesting because i am gluten intolerant that could happen to me but it won't